It’s a Marathon, Not a Sprint

Southern Writers on Writing panel at the 2018 Louisiana Book Festival

Southern Writers on Writing panel at the 2018 Louisiana Book Festival

As my 2018 book tour begins to wind down, I’m happily looking forward to events with all four of my books in the coming months. Marketing books is a marathon, not a sprint, although those first weeks and months coming out of the gate are important. This year’s release, SOUTHERN WRITERS ON WRITING (University Press of Mississippi, May 2018), has been so much fun to promote. I’ve been able to meet up with 22 of the 26 contributing authors at fourteen events in five states since May, including this past weekend’s panel at the Louisiana Book Festival in Baton Rouge, where I was joined by M. O. “Neal” Walsh, Nicole Seitz, Joe Formichella, and Suzanne Hudson.

 

Panel for CHERRY BOMB, with three other women authors at the 2018 Louisiana Book Festival

Panel for CHERRY BOMB, with three other women authors at the 2018 Louisiana Book Festival

I was also on a panel for my novel CHERRY BOMB, (on sale on Kindle for $4.99 right now!) with three other authors, talking about “Women’s Journeys of Self Discovery in Fiction.”

Yes, the three books I published in 2017 have still got legs, and I’m looking forward to promoting them into 2019. Here’s what’s coming up:

 

Save the Date CanvaNovember 13 (TOMORROW!) at 9 a.m. I’ll be speaking at the Alzheimer’s and Dementia Services of Memphis Caregiver Conference in Bartlett, Tennessee:

“A Caregiver’s Journey: The Garden in Our Backyard”

My topic is “Dealing With Disease and Relationships,” and I’ll be reading from the first book I published, TANGLES AND PLAQUES: A MOTHER AND DAUGHTER FACE ALZHEIMER’S (January 2017) and offering copies at a discount to caregivers. This book was published almost two years ago, and it’s a mixed blessing that it continues to be relevant, as Alzheimer’s disease is the only cause of death among the top ten in America that cannot be prevented, cured, or slowed. It’s the sixth leading cause of death in the United States. One in three seniors dies with Alzheimer’s or another form of dementia, and more than fifteen million people provide care to people with dementia. I’m hoping to bring some encouragement—and yes, even some humor—to some of those caregivers here in the Memphis area tomorrow.

 

December 18, at 5 p.m.—I’ll be back at Lemuria Books in Jackson, Mississippi, where my novel CHERRY BOMB (Dogwood Press, August 2017) launched sixteen months ago. This time I’ll be joining a few other Dogwood Press authors for an event celebrating the press. Watch for more details soon!

 

January 17, 2019—I’m headed to Jefferson, Texas, for another Pulpwood Queens Girlfriend Weekend. This time I’m moderating my fifteenth panel for SOUTHERN WRITERS ON WRITING, and I’ll be joined by 8-10 contributors!

 

March 1-3, 2019—I’ve been invited to speak at a women’s retreat at The Homestead Education Center in Starkville, Mississippi. Alison Buehler, an author and speaker who lives at the Homestead and directs retreats and other events there, came up with the idea to have a retreat around the themes in the first anthology I edited, A SECOND BLOOMING: BECOMING THE WOMEN WE ARE MEANT TO BE (Mercer University Press, March 2017). Several contributors to the book will be joining me to also speak at the weekend retreat: Nina Gaby, Kathy Rhodes, Ellen Morris Prewitt, and Jennifer Horne. Promotional materials and more details will be out after Christmas, but mark your calendars if you’re interested in this retreat!

4 books 2

Purple Angels, Disrupt Dementia, and Lewy Body Soldier

I recently shared a link to a wonderful site I had discovered, AlzAuthors.Org. It features over 150 authors writing about Alzheimer’s. A recent post at the site introduces Karen Severson, M.D. and her book—“Look, I Shrunk Grandma: A Psychiatrist’s Guide to Nursing Homes, Dementia, and End of Life.” Severson had several motivations for writing the book:

Karen Severson banner

 

She wanted to help families of loved ones with dementia understand the disease and the reasons for the treatment approaches in place in the nursing homes where their loved ones were residents. There is often tension between the residents’ families and the nursing home employees, and Severson’s book addresses those issues.

But she had another reason for writing the book:

My other motivation for writing Look, I Shrunk Grandma, a Psychiatrist’s Guide to Nursing Homes, Dementia and End of Life came from seeing persons with dementia suffering. Many families cling to a natural denial that dementia is terminal. As a result, they ask for medical procedures that could prolong life, but may also inadvertently cause more suffering. When stopping numerous interventions were suggested, we have been accused of being heartless or cruel, allowing someone to die. With the experience from my mother’s death, I wanted to do what I could to decrease end-of-life suffering.

Just a few days before this new book was introduced on the AlzAuthors.Org site, I read a special report in the July/August AARP Bulletin: “Our Goal: Disrupt Dementia.” One of several articles within the feature is Thomas K. Grose’s piece The Pursuit of A Cure for Dementia.” Grose explains about the Dementia Discovery Fund (DDF), a London investment fund that was set up in October of 2015 to “provide money to small companies seeking to discover novel therapies to stop or slow the onset of Alzheimer’s disease and other types of dementia….” There’s lots of good information in this special report—well worth the read.

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Norman McNamara, the "Lewy Body Soldier"

Norman McNamara, the “Lewy Body Soldier”

And speaking of the UK, the third piece of my post today is about a British man who wrote a book after his diagnosis with Lewy Body Disease.  Norman McNamara started the organization known as the Purple Angel Dementia Campaign after he was diagnosed with a form of dementia at age 50. I’m reading his book, The Lewy Body Soldier, which is imagesan amazing achievement given he wrote it while facing the disease. If you’re a regular reader (or writer) of literary fiction or professional narrative nonfiction, don’t expect this book to knock your socks off with perfect prose. In fact, it’s full of “errors,” that are, for me, easy to forgive, because the person who wrote it wasn’t trying to win any literary awards. He wrote it to tell an urgent, universal, and important story. Here’s a video interview with McNamara and his wife and caregiver. (His verbal skills are pretty amazing, considering this was 8 years after his initial diagnosis.)

the-lewy-body-soldier cover

 

Tangles and Plaques coverMy mother died from Alzheimer’s two years ago, and I wrote about her struggles with the disease and my relationship with her during the final decade of her life in my memoir TANGLES AND PLAQUES: A MOTHER AND DAUGHTER FACE ALZHEIMER’S. And her mother died from Alzheimer’s. I was familiar with this type of dementia, but I had never heard of Lewy Body Disease until two friends both were diagnosed with it. One has been in a nursing home for some time now, and the other is at home with 24/7 care from her husband, with part-time help. McNamara talks about some things in his book that I was not aware of before, including the experience of vivid hallucinations and night terrors. The disease, as he points out, isn’t a “one size fits all” type of thing.

Alz & Dem Services logoIf you or anyone you know has a loved one with dementia of any type, please share these links with them. I will be speaking at the Alzheimer’s and Dementia Services of Memphis’s annual conference on November 13, and I will continue to look for ways to learn more about this disease and share my knowledge and experience with others.

 

Save the Date Canva

Take Care

clift cover v6b- approved cover.inddSome time last year Elayne Clift invited me to contribute an essay to an anthology she was putting together. It was going to be about women caregivers. Ironically, I was already working on my book, Tangles and Plaques: A Mother and Daughter Face Alzheimer’s. I thought about contributing an excerpt, but I chose something different. I sent her a shorter version of an essay I had published in the Saint Katherine Review (Volume I, Number 2, 2012) about my last days with two people I loved dearly, both dying from cancer. “Watching” now appears as one of twenty-six essays in the collection, Take Care: Tales, Tips, and Love From Women Caregivers, edited by Clift. I’m so pleased to see this essay get new life in this book, and hopefully find many new readers. It’s a story that’s very close to my heart, and as I read it again now—nine years after I wrote it and five years after it was first published—memories of those precious but difficult days with my father, and then with a dear friend, as they were dying, seem as vivid as if they were happening today.

Clift is the perfect editor for this collection, as she learned early in her life what it meant to be a caregiver, as she explains in the preface to Take Care:

My own experience with caregiving began at an early age. My parents had married late, and while my two siblings and I were still young, both our father and mother suffered from chronic and often debilitating conditions: asthma and depression respectively. By the time I was in high school and my older sister had married, I had taken on may of the demanding tasks of caregiving, including carrying out the responsibilities that keep a home going and take care of (and worrying about) my younger brother. After our father’s death, looking out for my mother’s best interests and ensuring her care became paramount tasks that went on for many years until she died at the age of 86.

Clift did all of this while being married, raising two children, completing a graduate degree and doing volunteer work with underprivileged women. A Vermont Humanities Council Scholar, she is an award-winning writer, journalist and workshop leader, a book reviewer for the New York Journal of Books, and a regular columnist for the Keene Sentinel and the Brattleboro Commons. Her work has appeared in The Boston Globe, The Washington Post, The Christian Science Monitor, and The Chronicle of Higher Education, among other publications.

I wasn’t familiar with the other contributors but as I read their bios and essays, I quickly realized what good company I am in. I’m honored to be part of this collection. I especially love Patti See’s “Joyful Mystery.” Her blog, “Our Long Goodbye: One Family’s Experiences with Alzheimer’s,” has been read in over 90 countries. Helen Dening gives us five helpful tips for communicating with someone who has Alzheimer’s in her essay, “Lessons from My Mother: Communicating with Someone You Love Who has Alzheimer’s Disease.” Deborah Marshall, an art therapist who works with grieving hospice families, contributes three wonderful poems. Karen Clark, who received her MFA at the City College of New York once owned a bookshop in New York and now edits, proofreads, is a contributing editor for two anthologies and is at work on a novel. Her essay, “Roar Above the Hum,” made me laugh out loud and clap my hands, as she tells the story of accompanying “Corine” to dialysis and hearing her stories of her life as a civil rights activist in the sixties, founding a school in Africa, and eventually becoming the principal of a failing Harlem school and turning it into a showpiece. I could go on and on, but I hope you will get this book and read these inspirational stories for yourself!

You can purchase Take Care HERE, or on Amazon.

An Eternal Present

nursing-home-residents-playing-bingo-1In his post today on his blog, Glory to God For All Things, Father Stephen Freeman writes about his weekly visits with a parishioner who lives in a nursing home. There was much that sounded familiar, similar to my visits with my mother who lived in a nursing home for eight years. The BINGO games. The sameness and monotony of the days, the food, the activities, or lack thereof. I often wonder how I will handle this situation if I find myself a resident in one of these homes some day. I have already begun to ask God to give me grace to bear whatever comes.

And then Father Stephen said something that resonated strongly:

True moral/spiritual progress should be measured more by the ladies in the nursing home. It is in just such a situation that very average citizens, regardless of religious background, are forced into a rather monastic setting. Life is not your own. The routine is as set as the hours of prayer. Everything is focused into the present, or, at most, turned toward an eternal present.

A monastic setting. Depending upon whether or not Alzheimer’s has taken parts of my brain, I can imagine myself entering into the routine as though I was living in a monastery. I feel the need to develop a stronger prayer life as I grow older. To be ready to enter the eternal present.

My husband and I are in Charleston this week, so I’ll let Father Stephen’s post “fill in” for mine today. You can read it here:

“Old Friends”

And now I’m off to have lunch with an “old friend”… Nicole Seitz, an author who lives in Mount Pleasant, just 20 minutes from our hotel here in Charleston. We haven’t seen each other in seven years. Nicole has contributed a wonderful essay to the anthology I’m editing, Southern Writers on Writing (University Press of Mississippi, 2018) about the importance of friends to writers. Perfect. Have a great weekend everyone. 

Book Tour Continues: Nashville, Charleston, Beaufort, Memphis, and Oxford

My book tour in May is turning out to be as busy as April, and I’m loving it. Ater a signing for Tangles and Plaques at Barnes and Noble in Collierville last weekend, I just got home from two events in Nashville (actually Thompson’s Square and Brentwood) on Saturday (one for Tangles and Plaques and one for A Second Blooming) and this week I’m off to Charleston and Beaufort, South Carolina for two more readings:

ASB NeverMore flierFriday night (May 19) I’ll be at Buxton Books in Charleston, for Tangles and Plaques: A Mother and Daughter Face Alzheimer’s. I can’t wait to meet Polly and Julien Buxton, the newest independent booksellers in the area. (My husband is speaking at the Medical University of South Carolina while we’re there, so it’s a two-fer! Also looking forward to dinner with friends from his high school days in Marietta, Georgia, a close friend who used to live in Memphis, and lunch with another author friend. I love Charleston!)

On Saturday (May 20) I’ll be at Nevermore Books in Beaufort, South Carolina with local author Cassandra King, and Mississippi contributors NancyKay Wessman and Susan Marquez for a reading/signing for A Second Blooming: Becoming the Women We Are Meant to Be.  Cassandra arranged this event, and I’m looking forward to meeting her friends, the booksellers at Nevermore, Lorrie and David Anderson.

ASB Square Bks flierNext Wednesday (May 24) I’ve been invited to be the monthly author-speaker at Trezevant Manor (senior living) in Memphis for Tangles and Plaques: A Mother and Daughter Face Alzheimer’s.

And my final event for May will be on Thursday, May 25, at Square Books in Oxford, Mississippi, where I’ll join local authors/contributors Beth Ann Fennelly and Julie Cantrell for a reading and signing for A Second Blooming: Becoming the Women We Are Meant to Be.

TidesOn a different note, it’s always fun to see other work by the contributors to A Second Blooming. This week I found a fun piece by Cassandra King in Coastal Living magazine’s June issue: “The Tides That Bind.” A perfect article for Father’s Day, Cassandra “returns to the waters of her childhood, where harvesting oysters made delicious memories for a father and his girls.”

So when does a busy author get to read? I make time to read every day. Not only because I love it, but because the words of other authors feed my soul and my craft. Yesterday I spent a leisurely Mother’s Day afternoon finishing my latest read, Kristin Hannah’s wonderful historic fiction novel from 2015, The Nightingale. Powerful images of World War II in German-occupied France, with characters so real you are tempted to Google them! I especially loved how Hannah brought to life some of the women who fought so bravely for the resistance, and to save children orphaned by the war.

Next up? I’m trying to decide whether to dive into Lewis Nordan’s novel, Wolf Whistle (highly recommended by a couple of friends with excellent literary tastes) or Anything is Possible, Elizabeth Strout’s followup to her book, My Name is Lucy Barton, which I read recently and loved. Which one will I take on my trip to South Carolina this week? Stay tuned….

Sometimes This Happens . . .

Susan signing 2I have heard stories from best-selling authors about having only one or two people show up for a reading/signing at a bookstore. Or about sitting at a signing table at Books-a-Million or Barnes and Noble and having no one or only a couple of people even make eye contact or stop to ask about your book. Now I know what that feels like. I drove out to Collierville yesterday afternoon for a signing and reading for Tangles and Plaques: A Mother and Daughter Face Alzheimer’s.

It wasn’t the fault of the good people at Barnes and Noble at Carriage Crossing in Collierville, Tennessee. They did a great job of promoting the event:

Listing on the EVENT page of their web site for several weeks prior

Large sign on the front door for several days prior to the event

Nice signing table right inside the front door with another sign and copies of the book

Announcements over the PA system inside the store before the signing, and again before the reading/discussion session

Set up a dozen nice chairs in a sunny area by the windows, right next to the Starbucks Café inside the store

Table and signAnd so how many people showed up? ONE! Cheryl Wright Watkins, a writer friend who lives in the area, who had already bought the book at another event, came just to show moral support. If she hadn’t been there, I wouldn’t have had anyone to talk to for the thirty minutes I sat at the signing table and then the thirty minutes I waited for folks to show up for the reading/discussion. We had a great visit, enjoying our Starbucks drinks and catching up on our busy lives. And I was happy to see that this lovely bookstore seemed to be doing well, at least based on the foot traffic on a beautiful Sunday afternoon when people tend to be at outdoor events.

I knew it was a risk scheduling an event in Collierville, since I only know a couple of people who live in the area. But I thought I’d give it a try, and the booksellers who organized it for me were so encouraging. I’m sorry they now have so many books to return. Hopefully they’ll keep a few in stock.

Door signThe experience was humbling and also gave me a great appreciation for all the other events I’ve participated in this spring with wonderful turnouts. Whenever anyone takes time from their busy life to go to a bookstore and meet an author and buy her book, it’s a victory for the literary world.

Thanks so much to the wonderful booksellers at Barnes and Noble in Collierville for hosting me. I wish you much continued success!

On the Road Again #ILoveWillie

I recently watched an old Willie Nelson movie, “Honeysuckle Rose,” about Willie’s infamous road trips he took with his band. They kept playing his song, “On the Road Again,” and I can’t get it out of my head. I’ll probably be singing it next week when I get on the road again for another leg of my spring book tour. Where to this time?

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Next Tuesday I’ll be headed down to Fairhope, Alabama, where I’ll have a reading/signing at Page & Palette (4 p.m. April 4) for Tangles and Plaques: A Mother and Daughter Face Alzheimer’s. My hosts will be my author friends, Suzanne Hudson and Joe Formichella. I love Fairhope and April will be a beautiful time of the year to be there!

Emma w ASB and customerWednesday I’ll drive from Fairhope to New Orleans for an event at Garden District Book Shop for A Second Blooming: Becoming the Women We Are Meant to Be (6 p.m. on April 5). I’ll be joined by my hostess, New Orleans resident and contributor to A Second Blooming, Emma Connolly, and two contributors from Jackson, Mississippi—Susan Marquez and NancyKay Wessman. Emma’s essay is about her “second blooming” as a shopkeeper on Magazine Street, where she owns Uptown Needle and Craftworks. Here’s Emma (on the left)  selling a copy of A Second Blooming to one of her customers in the shop. (Can you tell this was during Mardi Gras?)

Thursday I’ll head back up I-55 to Jackson, Mississippi, for another event for A Second Blooming, again at Lemuria (5 p.m. on April 6). I’ll be joined by Jackson residents Susan Marquez and NancyKay Wessman, who will be sharing their stories of second bloomings after loss.

Two weeks from tomorrow I’ll drive up to Dyersburg (Tennessee) for the Dyersburg State Community College Women’s Conference (April 18) where I’ve been invited to speak about my journey as an author. I’ll talk about my writing and publishing career, and have an opportunity to sell copies of both Tangles and Plaques and A Second Blooming. This event usually attracts about 80-100 women from the Dyersburg area, and includes a luncheon and fashion show. I’m so happy to be included!

And that will wrap up my April book tour. Stay tuned next month to hear about the five events I have planned in May, with travels to Charleston and Beaufort, South Carolina, another event in Oxford (Mississippi), and two local events in the Memphis area. I’ll keep all of these posted on my EVENTS page (just click the link at the top of the home page of my web site) so you’ll know when I’ll be in your area.

I’ll close with a picture of me with the Memphis contributors to A Second Blooming, at our event at Memphis Botanic Garden yesterday. It was a beautiful day and lots of folks came out for the event (we sold 50 books!) and we had a great time. Thanks so much to everyone who came and purchased a book. I hope you LOVE it! And thanks to Chapter 16 for getting a review into the Commercial Appeal yesterday morning, just in time to bring in some more readers.

Susan Cushman, Jen Bradner, Ellen Morris Prewitt, Sally Palmer Thomason, and Suzanne Henley

Susan Cushman, Jen Bradner, Ellen Morris Prewitt, Sally Palmer Thomason, and Suzanne Henley

As always, thanks for reading. I can hear Willie strumming that guitar again….

Rolling a Joint on the Square in Oxford, Mississippi

rolling a jointSomeone sent me this hilarious sign they saw on Facebook. He sent it because this past Friday night I rolled a joint on the square in Oxford, Mississippi, following my reading of Tangles and Plaques at Square Books. The joint was my left ankle.  I had gone to dinner with a group of folks following the reading (with over 80 in attendance at Square Books!) and was walking back to my car when I missed the edge of a curb and fell. Thankfully I didn’t break a hip or hurt my neck or back or something more serious than my ankle.

And also thankfully it’s not broken. This morning’s x-ray shows some torn ligaments that should heal in a few weeks. Back in 2013 when I broke my other ankle and leg in a car wreck, I had two surgeries, wore a cast, then a walking boot. The walking boot was uncomfortable because Even Upsit made my stride uneven, I didn’t have any safe, flat shoes that were high enough. Now they ‘ve got this cool new thing called an “Even Up” that you put on the bottom of your shoe to make your feet at even heights. What a difference that makes!

I posted lots of pictures on Facebook from the event at Square Books Friday night, and also at Lemuria in Jackson on Saturday, so I’ll only repost one here. It was so much fun seeing several of my Tri Delt sorority sisters in Oxford (including my “big sister” whom I hadn’t seen since my wedding in 1970!) and several high school classmates and other friends and family in Jackson. Great reception at both Mississippi events. Thanks to everyone who helped organize them, and to everyone who came to the readings and bought books! Next event for Tangles and Plaques is a salon in a private home here in Memphis, then on to WordsWorth Books in Little Rock, Arkansas on the 18th. What a ride!

 

Ole Miss Tri Delt sisters: Julia Thornton, Gayle Gresham Henry, Susan Cushman, Jan Champion

Ole Miss Tri Delt sisters at Square Books in Oxford: Julia Thornton, Gayle Gresham Henry, Susan Cushman, Jan Champion

Gearing Up for Reviews: Maintaining a Dignified Silence

Yesterday was release day for my first book, Tangles and Plaques: A Mother and Daughter Face Alzheimer’s. After 24 hours of emotional celebration, I woke up today thinking, “and now the reviews will begin.” A few months ago I clipped this cartoon from the newspaper, hoping that one day I might get a 5 star review.

five star review

 

My book has been sent to several professional reviewers, and then of course there are readers who might review it on Goodreads or Amazon or their personal blogs. I’ve reviewed many books on my blog over the years, so I know what it’s like to be on the other side of the experience. But how should I gear up for reading other people’s reviews of my book?

This article by James Parker and Zoe Heller from a few years ago in the New York Times has some good advice. First from Parker:

A writer should not respond to his or her critics. A writer should rise above in radiant aloofness.

I don’t know about the “radiant aloofness” part, but I can see the wisdom in not responding to reviews, whether they are good or bad. I don’t plan to argue with someone who gives a bad review or bubble over with thanks for a good review. They are just doing their jobs, right? (Unless it’s a friend praising me out of the goodness of their heart.)

Heller’s advice also sounds good:

Art is long, and life is quite long too. There will be other books, other nasty critics, and with them, a myriad of other opportunities to maintain a dignified silence.

I imagine that my little book won’t garnish reviews in either extreme, but who knows? At this point, I think I will welcome any words from someone who takes the time to read the book and respond in print. Of course I’ll post links to the good ones. We’ll see how I respond if there are any bad ones. Holding my breath….

Books I Did NOT Write About Alzheimer’s

top-alzheimers-and-dementia-books-for-caregiversSince my first book, Tangles and Plaques: A Mother and Daughter Face Alzheimer’s, is coming out soon (release date is January 31!) and I have numerous events at which I’ll be reading and discussing the book in the coming months, I’ve begun preparing for those events a bit. I’ve chosen which excerpts from the book I might like to read at various events, but I’ve also been thinking about how much is NOT included in the book. About the questions I might be asked during discussion times—including questions for which I might not have answers.

To that end, I’ve created a list of books I DID NOT WRITE about Alzheimer’s, which might serve as resources for those wanting to read/learn more. I’m going to print the list off and give out copies at readings. This is a very short list. If you Google the topic, you’ll find dozens, possibly hundreds of other books and articles. And while you might wonder why I have not read more widely on the subject, all I can see is that I was too busy living the very personal journey with my mother.

Memoirs:

Inside the Dementia Epidemic: A Daughter’s Memoir by Martha Stettinius

The Living End: A Memoir of Forgiving and Forgetting by Robert Leleux

Tangles: A Story About Alzheimer’s, My Mother, and Me (an illustrated/graphic memoir) by Sarah Leavitt
Novels:

Still Alice by Lisa Genova (movie starring Julianne Moore) “Alice” is a cognitive psychology professor at Harvard who is diagnosed with Alzheimer’s….

Turn of Mind by Alice LaPlante (New York Times bestseller about a retired orthopedic surgeon suffering from dementia.)

Academic:

Families Caregiving for an Aging America

Follow this link to purchase the report or download a free (PDF) copy of the report:

https://www.nap.edu/catalog/23606/families-caring-for-an-aging-america?gclid=COHjg46mptECFQ6BaQodq34A1g

 

The books on my short list aren’t included in other lists I found online, like these (for those who want to read more widely):

Top 5 Books on Alzheimer’s Disease

Recommended Reading from the Alzheimer’s Association

Top Alzheimer’s and Dementia Books for Caregivers (from the senior living blog, “A Place For Mom”

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